Colombia 1, Antioquia project

Creation of comprehensive educational and awareness network for patients in remote areas of Antioquia

Partner institution
Liga Antioqueña de Hemofílicos (LIHEA), Medellín

Represented by
Mariangela Espinosa Blanco, CEO

Duration
2 years, Q3 2012 – Q4 2014

Status
Completed

Objectives

Identify all actors involved in the provision of care for haemophilia and allied bleeding disorders in the municipalities of Antioquia
Promote, encourage and develop clinical support activities and social development through specific work plans
Train all members of the network including people with haemophilia and families in order to improve the quality of care and health conditions of people with haemophilia and their families
Establish network between the different actors and people with haemophilia in the municipalities of Antioquia to assure continuity of improved care

47 municipalities visited
43 new people with haemophilia identified (376 -> 419)
117 people with haemophilia, 279 family members, 436 healthcare professionals and 38 government entities trained
64 people with haemophilia evaluated by the nutritionist: 20% underweight, 24% overweight -> individual nutritional plans, group workshops, legal interventions
117 people with haemophilia evaluated by the physiotherapist: 57.3% have musculoskeletal (MSK) care complications -> individual rehabilitation plans
67 people with haemophilia evaluated by the psychologist: high levels of stress and anxiety due to low job and educational opportunities, low accessibility, availability and affordability of care, no communication with healthcare professionals, discrimination, stigmatisation
97% of people with haemophilia received legal counselling -> 31 families in protection plan
Closing educational sessions in 7 regions with 76 people with haemophilia and 96 family members from 41 municipalities
Presentation of results to health authorities