Colombia 1, Antioquia

Creation of comprehensive educational and awareness network for patients in remote areas of Antioquia

Partner institution
Liga Antioqueña de Hemofílicos (LIHEA), Medellín

Represented by
Mariangela Espinosa Blanco, CEO

Duration
2 years, Q3 2012 – Q4 2014

Status
Completed

Achievements

  • 47 municipalities visited
  • 43 new patients identified (376 -> 419)
  • 117 patients, 279 family members, 436 HCPs and 38 government entities trained
  • 64 patients evaluated by the nutritionist: 20% underweight, 24% overweight -> individual nutritional plans, group workshops, legal interventions
  • 117 patients evaluated by the physiotherapist: 57.3% have MSK complications -> individual rehabilitation plans
  • 67 patients evaluated by the psychologist: high levels of stress and anxiety due to low job and educational opportunities, low accessibility, availability and affordability of care, no communication with HCPs, discrimination, stigmatisation
  • 97% of patients received legal counselling -> 31 families in protection plan
  • Closing educational sessions in 7 regions with 76 patients and 96 family members from 41 municipalities
  • Presentation of results to health authorities
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Colombia: From isolation to cohesion in Antioquia

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Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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