China 8 project

Establishing and strengthening quality haemophilia care in the Northeast region of China

Partner institution
Institute of Haematology and Hospital of Blood Diseases, Chinese Academy of Medical Sciences, Tianjin

Represented by
Prof Renchi Yang, Head of the Institute

Duration
3 years, started Q3 2017

Status
Execution

Objectives

Establish and strengthen haemophilia care in 7 provinces in China
Increase quality diagnosis across 7 provinces
Consolidate patient data in national online patient registry, including medical data
Empower patients and families to enjoy better quality of life and becoming an active partner within the haemophilia community
Increase understanding and recognition about haemophilia amongst general public, HCPs and authorities
Improve legislation and reimbursement for haemophilia care by introducing haemophilia within provincial health care agendas