China 8

Establishing and strengthening quality haemophilia care in the Northeast region of China

Partner institution
Institute of Haematology and Hospital of Blood Diseases, Chinese Academy of Medical Sciences, Tianjin

Represented by
Prof Renchi Yang, Head of the Institute

Duration
3 years, started Q3 2017

Status
Execution

Objectives

  • Establish and strengthen haemophilia care in 7 provinces in China
  • Increase quality diagnosis across 7 provinces
  • Consolidate patient data in national online patient registry, including medical data
  • Empower patients and families to enjoy better quality of life and becoming an active partner within the haemophilia community 
  • Increase understanding and recognition about haemophilia amongst general public, HCPs and authorities
  • Improve legislation and reimbursement for haemophilia care by introducing haemophilia within provincial health care agendas

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

Apply Here