China 7 project

Development of haemophilia care in Tibet Autonomous Region

Partner institution
Shandong Centre of Haemophilia Diagnosis and Treatment

Represented by
Dr Xinsheng Zhang

Duration
2.5 years, Q4 2016 – Q2 2019

Status
Completed

Objectives

Establish multidisciplinary care at Tibet People’s Hospital in Lhasa. The last province in China without haemophilia centre
Education of healthcare professionals in Tibet Autonomous Region including train-the-trainer
To build a multidisciplinary team and Tibet People’s Hospital and to assist them to develop cooperation with local government
Establish access to the Chinese national registry and register newly diagnosed people with haemophilia
To guide Tibet Blood Centre on the national quality standards to enable appropriate production of cryoprecipitate in local blood centre
Improve the awareness of multidisciplinary care in haemophilia amongst healthcare professionals, people with haemophilia, families and government

1 doctor, 1 nurse and 1 laboratory technician from Tibet Blood Centre trained in Shandong Blood Center and in Beijing Children’s Hospital
49 healthcare professionals from Tibet trained raising awareness about haemophilia
3 laboratory technicians in Tibet Blood Centre trained
Tibet Blood Centre trained to be able to produce cryoprecipitate
Educational and awareness materials printed and distributed
Access to the Chinese national registry established and people with haemophilia registered

Basic haemophilia care is available in Lhasa
People with haemophilia can receive basic diagnosis in Lhasa
Healthcare professionals across Tibet are able to recognise haemophilia signals and refer for diagnosis