China 4 project
Identify and improve five city level comprehensive haemophilia centres in Shandong province
Partner institution
Shandong Centre of Haemophilia Diagnosis and Treatment, Jinan
Represented by
Dr Xinsheng Zhang, Director
Duration
2.5 years, Q3 2014 – Q2 2017
Status
Completed
Objectives
- Conduct a tailored training programme on these centres and assist them in developing cooperation with local government
- Foster knowledge of people with haemophilia and families and give them tools to improve their quality of life
- Raise awareness through education materials, press engagement and a documentary film
- Diagnose and register 200 new cases identified through the proposed awareness activities
Achievements
- Strengthened haemophilia comprehensive care work in Shandong.
- Established and strengthened 5 haemophilia treatment centres in Shandong Province where each city level haemophilia centre had set up a multidisciplinary team including haematologists, paediatricians, nurses, laboratory technician, physical therapist, dentist, orthopaedist, local blood centre, patient group and local health bureau
- 519 people with haemophilia were newly diagnosed and registered during the duration of the project
- More than 640 people directly benefited from the project: >100 doctors, 100 nurses, 30 lab technicians, 10 physiotherapists, 400 people with haemophilia and family members
