China 10
Strengthening comprehensive care and empowering children and families in six provinces of China
Partner institution
Beijing Children’s Hospital, Capital Medical University
Represented by
Dr Runhui Wu, Deputy-Director of Hematology/Oncology Center, Beijing Key Laboratory of Pediatric Hematology/Oncology, National Key Discipline of Pediatrics
Duration
3 years, envisaged start Q3 2018
Status
Formalisation
Objectives
- Strengthen paediatric comprehensive care in 6 provinces, using and tailoring the Beijing Children’s Hospital comprehensive care model to improve organisation and delivery of care in haemophilia treatment centres
- Empower children with haemophilia and their family members and increase their self-care knowledge using the Beijing Children’s Hospital educational model
- Create awareness of haemophilia amongst the patient community, public and authorities
