China 1
Haemophilia education, screening and registration
Partner institution
Hematology Department, Ruijin Hospital, Shanghai
Represented by
Prof Hongli Wang
Prof Man-Chiu Poon, project consultant
Duration
2 years, Q4 2006 – Q4 2008
Status
Completed
Achievements
- Strength the National haemophilia network – six centres & the “Haemophilia Home of China”, reaching out more than 22 provinces
- Creation of a national web-based bleeding disorders registry, including 2,844 people with haemophilia registered
- Improved diagnosis, testing 1,616 people with haemophilia
- Training Programs: National diagnosis and treatment guidelines, Nursing manual, Medical information programme on National TV and Interactive HHC-website
