China 1 project
Haemophilia education, screening and registration

Partner institution
Hematology Department, Ruijin Hospital, Shanghai
Represented by
Prof Hongli Wang
Prof Man-Chiu Poon, project consultant
Duration
2 years, Q4 2006 – Q4 2008
Status
Completed
Objectives
- Establish cooperation between major haemophilia centres (Shanghai, Tianjin, Beijing, Hefei, Guangzhou, Jinan)
- Educate doctors, nurses, lab technicians and people with haemophilia – train-the-trainer concept
- Optimise three designated reference laboratories for haemophilia diagnosis
- Run screening programme
- Improve national registry for people with haemophilia
Achievements
- Strength the national haemophilia network – six centres & the “Haemophilia Home of China”, reaching out to more than 22 provinces
- Creation of a national web-based bleeding disorders registry, including 2,844 people with haemophilia registered
- Improved diagnosis: testing 1,616 people with haemophilia
- Training Programmes: National diagnosis and treatment guidelines, nursing manual, medical information programme on national TV and interactive HHC-website