China 1

Haemophilia education, screening and registration

Partner institution
Hematology Department, Ruijin Hospital, Shanghai

Represented by
Prof Hongli Wang
Prof Man-Chiu Poon, project consultant

Duration
2 years, Q4 2006 – Q4 2008

Status
Completed

Achievements

  • Strength the National haemophilia network – six centres & the “Haemophilia Home of China”, reaching out more than 22 provinces
  • Creation of a national web-based bleeding disorders registry, including 2,844 people with haemophilia registered
  • Improved diagnosis, testing 1,616 people with haemophilia
  • Training Programs: National diagnosis and treatment guidelines, Nursing manual, Medical information programme on National TV and Interactive HHC-website

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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