China 1 project

Haemophilia education, screening and registration

Partner institution
Hematology Department, Ruijin Hospital, Shanghai

Represented by
Prof Hongli Wang
Prof Man-Chiu Poon, project consultant

Duration
2 years, Q4 2006 – Q4 2008

Status
Completed

Objectives

Establish cooperation between major haemophilia centres (Shanghai, Tianjin, Beijing, Hefei, Guangzhou, Jinan)
Educate doctors, nurses, lab technicians and people with haemophilia – train-the-trainer concept
Optimise three designated reference laboratories for haemophilia diagnosis
Run screening programme
Improve national registry for people with haemophilia

Strength the national haemophilia network – six centres & the “Haemophilia Home of China”, reaching out to more than 22 provinces
Creation of a national web-based bleeding disorders registry, including 2,844 people with haemophilia registered
Improved diagnosis: testing 1,616 people with haemophilia
Training Programmes: National diagnosis and treatment guidelines, nursing manual, medical information programme on national TV and interactive HHC-website