Chile 1 project

National improvement of haemophilia treatment

Partner institution
Roberto del Río Hospital, Santiago

Represented by
Dr María Mercedes Morales Gana, Haematologist, Pediatrician, Chief of Laboratory

Duration
3 years, Q1 2009 – Q2 2012

Status
Completed

Objectives

• Improve treatment standards and quality
• Develop educational programmes for healthcare professionals
• Screening programme
• Update national registry

Achievements

• Training of 21 physicians and 7 physiotherapists 
• Education of >1,000 people with haemophilia and families through consultations with healthcare professionals and educational material 
• 865 known and 127 new people with haemophilia evaluated and diagnosed
• 1,375 people with haemophilia in registry
• Educational material for people with haemophilia, parents, physiotherapists, physicians and schools developed – 9,600 copies

“I was diagnosed with haemophilia at an early age, but my treatments never seemed to work and I suffered very severe complications. After a while I lost motivation and hope. Since my re-evaluation, I have found out that I was diagnosed with the wrong form of haemophilia. Finally I can now get the right treatment for my condition,” patient from Chile.