Chile 1 project

National improvement of haemophilia treatment

Partner institution
Roberto del Río Hospital, Santiago

Represented by
Dr María Mercedes Morales Gana, Haematologist, Pediatrician, Chief of Laboratory

3 years, Q1 2009 – Q2 2012



  • Improve treatment standards and quality
  • Develop educational programmes for healthcare professionals
  • Screening programme
  • Update national registry


  • Training of 21 physicians and 7 physiotherapists 
  • Education of >1,000 people with haemophilia and families through consultations with healthcare professionals and educational material 
  • 865 known and 127 new people with haemophilia evaluated and diagnosed
  • 1,375 people with haemophilia in registry
  • Educational material for people with haemophilia, parents, physiotherapists, physicians and schools developed – 9,600 copies

“I was diagnosed with haemophilia at an early age, but my treatments never seemed to work and I suffered very severe complications. After a while I lost motivation and hope. Since my re-evaluation, I have found out that I was diagnosed with the wrong form of haemophilia. Finally I can now get the right treatment for my condition,” patient from Chile.

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

Apply Here