Central America, Caribbean and Venezuela project

Empowering and developing future community leaders to advocate and create awareness in their countries and across the region of Central America, the Caribbean and Venezuela

Partner institution
Fundación de Apoyo al Hemofílico (FAHEM), Santo Domingo, Dominican Republic to co-ordinate across the region

Represented by
Fendi Valdez Bisono, FAHEM
Haydée Altagracia Benoit de García, FAHEM

1.5 years, Q2 2014 – Q4 2016



  • Plan and coordinate activities for the patient organisations to identify and form new leaders
  • Empower and develop 18 young leaders in the region
  • Start creating micro-projects by the new leaders to integrate them to their patient organisations and raise funds to implement the projects and advocate for their cause
  • Replication of acquired knowledge and skills by the new leaders to other members of their organisations


  • Succession planning, improved strategic organisation and young leaders taking over responsibilities (128 new active youth; Costa Rica: from 0 to 30 youth; Dominican Republic: project office created; El Salvador: organisation revived and recognised by WFH; Venezuela: 3 youth now part of the board (sports, youth and communications coordinators) and 2 of the youth leaders are leading regional chapters)
  • Improved communication with medical community (Guatemala: joint action plan at HLF in Lima; Nicaragua: joint leadership of NNHF project; El Salvador: working together for the benefit of the patients)
  • More cohesion and collaboration amongst the patient community on a regional level

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

Apply Here