Bulgaria 1 project
Creation of Comprehensive Haemophilia Treatment Centre (CHTC) – Sofia
Partner institution
Comprehensive Haemophilia Treatment Centre, Haematology Hospital “Joan Pavel”, Sofia
Represented by
Prof Toshko Jelev Lissitchkov, MD, PhD, Head of Blood Coagulation Department National Center of Haematology
Duration
2 years, Q1 2007 – Q4 2008
Status
Completed
Objectives
- Form a comprehensive haemophilia treatment centre in Sofia
- Train and educate for a multidisciplinary approach
- Update current haemophilia guidelines for prevention and treatment of bleeding
- Create an awareness programme in West Bulgaria
- Regular examination of laboratory test performance
- Support and update national haemophilia registry
Achievements
- Comprehensive Haemophilia Treatment Centre established in Sofia
- 26 physicians, 8 nurses, 136 people with haemophilia and 25 family members educated about haemophilia
- 8 educational brochures developed and 5,000 copies distributed
- 146 people with haemophilia received comprehensive consultation
- Genetic consultation
- Registry updated and 21% more people with haemophilia registered
- National prophylaxis and treatment guidelines for bleeding disorders developed and approved by the Ministry of Health
