Brazil 5 project
Training of haemostasis laboratories and patient associations as strategy for sustainable diagnosis
Partner institution
Brazilian Federation of Hemophilia
Represented by
Dr Tania Maria Onzi Pietrobelli, President of Brazilian Federation of Hemophilia
PhD Francisco de Paula Careta, Vice-President of the Brazilian Federation of Hemophilia
Duration
3 years, Q2 2018 – Q4 2021
Status
Completed
Objectives
- Advance level of diagnosis in 8 pre-selected HTCs at national level
- Achieve diagnosis sustainability by training local patient association members and HTCs on advocacy and communication
- Analyse and improve vWD subtype classification
Delivering a sustainable diagnosis strategy
How can you improve diagnosis in a sustainable way? This was the challenge addressed in Brazil, where in some cases, samples were being sent up to 2,500km away for testing. Watch the short film to find out how the project helped to ensure better access to diagnosis now and in the long-term.
