Brazil 5

Training of haemostasis laboratories and patient associations as strategy for sustainable diagnosis

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Partner institution
Brazilian Federation of Hemophilia

Represented by
Dr Tania Maria Onzi Pietrobelli, President of Brazilian Federation of Hemophilia
PhD Francisco de Paula Careta, Vice-President of the Brazilian Federation of Hemophilia


Duration
2.5 years, started Q1 2018

Objectives

  1. Advance level of diagnosis in 8 pre-selected HTCs at national level
  2. Achieve diagnosis sustainability by training local patient association members and HTCs on advocacy and communication
  3. Analyse and improve vWD subtype classification

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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