Brazil 2 project

Improve MSK status of PwH in Brazil by Measuring, Analysing, Disseminating and Educating – the way to correct, prevent and optimise the treatment

Partner institution
IHTC “Luiz Cláudio Pizzigatti Correa”, Hemocentro UNICAMP (State University of Campinas), Campinas

Represented by
Dr Margareth Castro Ozelo, Director of IHTC Unit of Hemophilia, Hemocentro UNICAMP

Duration
3 years, Q3 2011 – Q3 2014

Status
Completed

Objectives

• Establish guidelines for musculoskeletal (MSK) care evaluation and treatment
• Develop educative materials for people with haemophilia, their families and for healthcare professionals
• Improve the Quality of Life (QoL) for people with haemophilia through improvements in their physical, mental and social well-being

Achievements

• Built MSK expertise and the quality of multidisciplinary care
• Developed guidelines for MSK care and incorporated validated internationally used MSK assessments into a computer-based registry
• Support the development of MSK care beyond Brazil, the registry is now available in four languages