Brazil 1 project

PRO-HOPE: Improvement of Haemophilia Organisation and Patients Education

Partner institution
Brazilian Federation of Hemophilia – FBH, Cuiaba

Represented by
Dr Sylvia Thomas, MD

3 years, Q3 2006 – Q2 2009



  • Improve haemophilia infrastructure and treatment delivery with emphasis on eight regions
  • Support re-organisation of Brazilian Federation of Haemophilia (BFH)
  • Ensure better cooperation between regional BFH associations and their treatment centres (haemocentros)
  • Educate people with haemophilia, patient leaders, doctors and nurses
  • Establish 2 national laboratories and train lab staff


  • 288 healthcare specialists trained in eight regions
  • 61 haemophilia leaders educated
  • Nurses workshops held in regions, leading to the formation of Brazilian Nurses Working Group
  • Haemophilia manual ‘Convivendo com a Hemofilia’ created and illustrated by patient
  • Six WFH manuals translated into Portuguese, printed and distributed during leader training
  • 2,000 copies of NNHF comic ‘The amazing adventure of Alejandro’ printed and distributed
  • 41,300 copies of printed educational material distributed

“My dream to strengthen the Federação Brasileira de Hemofilia (FBH) leadership as well as its regional chapters, to build a strong and united haemophilia society became true, with the support of NNHF,” Dr Sylvia Thomas, project partner.

Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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