Brazil 1 project
PRO-HOPE: Improvement of Haemophilia Organisation and Patients Education
Partner institution
Brazilian Federation of Hemophilia – FBH, Cuiaba
Represented by
Dr Sylvia Thomas, MD
Duration
3 years, Q3 2006 – Q2 2009
Status
Completed
Objectives
- Improve haemophilia infrastructure and treatment delivery with emphasis on eight regions
- Support re-organisation of Brazilian Federation of Haemophilia (BFH)
- Ensure better cooperation between regional BFH associations and their treatment centres (haemocentros)
- Educate people with haemophilia, patient leaders, doctors and nurses
- Establish 2 national laboratories and train lab staff
Achievements
- 288 healthcare specialists trained in eight regions
- 61 haemophilia leaders educated
- Nurses workshops held in regions, leading to the formation of Brazilian Nurses Working Group
- Haemophilia manual ‘Convivendo com a Hemofilia’ created and illustrated by patient
- Six WFH manuals translated into Portuguese, printed and distributed during leader training
- 2,000 copies of NNHF comic ‘The amazing adventure of Alejandro’ printed and distributed
- 41,300 copies of printed educational material distributed
“My dream to strengthen the Federação Brasileira de Hemofilia (FBH) leadership as well as its regional chapters, to build a strong and united haemophilia society became true, with the support of NNHF,” Dr Sylvia Thomas, project partner.
