Brazil 1

PRO-HOPE: Improvement of Haemophilia Organisation and Patients Education

Partner institution
Brazilian Federation of Hemophilia – FBH, Cuiaba

Represented by
Dr Sylvia Thomas, MD

Duration
3 years, Q3 2006 – Q2 2009

Status
Completed

Achievements

  • 288 healthcare specialists trained in eight regions
  • 61 haemophilia leaders educated
  • Nurses workshops held in regions, leading to the formation of Brazilian Nurses Working Group
  • Haemophilia manual ‘Convivendo com a Hemofilia’ created and illustrated by patient
  • Six WFH manuals translated into Portuguese, printed and distributed during leader training
  • 2,000 copies of NNHF comic ‘The amazing adventure of Alejandro’ printed and distributed
  • 41,300 copies of printed educational material distributed

“My dream to strengthen the Federação Brasileira de Hemofilia (FBH) leadership as well as its regional chapters, to build a strong and united haemophilia society became true, with the support of NNHF,” Dr Sylvia Thomas, project partner.

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PRO-HOPE: Improvement of Haemophilia Organisation and Patients Education

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Partner with NNHF

NNHF funds and supports projects in developing countries to improve access to care for people with haemophilia and allied bleeding disorders.

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