Bolivia 1 project
Setting up diagnosis, basic care and education in Bolivia
Partner institution
Fundación Nacional de Hemofilia Bolivia
Represented by
Victor Manuel Ponce Rojas, President
Duration
2 years, Q2 2014 – Q3 2016
Status
Completed
Objectives
- Establish coagulation laboratory facilities and skills
- Organise a national educational event for 200 participants
- Raise awareness through a campaign engaging media
Achievements
- Two laboratories equipped
- Training of 10 laboratory technicians
- 100 patients diagnosed National patient registry in Excel created
- Training of HCPs
- Creation of National Medical Haemophilia Network with 16 HCPs from 7 regions
- Patient camp with 150 participants
- Advocacy work – MoH relationship/engagement Awareness
- TV spot in collaboration with MoH.
“We need help establishing new facilities and providing healthcare professionals with the training they need to be able to identify and diagnose haemophilia, but we need the funds to make it happen. Otherwise, many Bolivians with bleeding disorders will lead short, painful lives,” Victor Manuel Ponce Rojas, president of the patient association and NNHF project partner.
