Over the past 15 years, Denise Braendgaard, General Manager at the NNHF, has witnessed great progress in access to haemophilia care in countries where the NNHF has been supporting projects.
In 2022 we have talked to people with haemophilia, healthcare professionals, members of patient organisations or expert volunteers, learning how they are impacting care in their country or region.
After attending a scholarship programme in France, early in his career, Prof Saliou Diop realised that a lot had to be done to improve haemophilia care in his home country of Senegal.
Over a broad and distinguished career in the UK and more than a decade volunteering in Africa and Asia, Dr Kate Khair has become an important champion for haemophilia nurses.
Ms Wajiha Javaid has been working with the Haemophilia Foundation – Pakistan (HFP) since she was 16. She is currently Executive member of HFP and coordinator of the National Women’s group, which was officially formed in 2017.
When Novi Riandini got married to her husband, it was the day a close relationship with haemophilia started.
Clerment Masoabi Sefojane is an active young adult, living with severe haemophilia A in Bloemfontein, South Africa.
Just a few years ago, people with haemophilia in the northern part of Romania had to travel 6 to 9 hours by bus or train to receive diagnosis and care. But thanks to a young doctor, Ciprian Tomuleasa, and his team in the city of Cluj Napoca the situation has significantly improved. The laboratory in Cluj Napoca has been upgraded to provide quality diagnosis, a new national registry has been established and haemophilia care in north Romania has been standardised.
Dr Laura Villarreal, paediatric haematologist and professor at the Faculty of Medicine at the University in Nuevo León – Mexico, has built up the haemophilia clinic at the University Hospital in Monterrey from scratch. In this episode you will hear about her vision of a multidisciplinary care team, how she was able to build it, and what it means for people with haemophilia and their families.