Listening, Learning, Leading Together
Over the past 15 years, Denise Braendgaard, General Manager at the NNHF, has witnessed great progress in access to haemophilia care in countries where the NNHF has been supporting projects.
Archives: Episode
Archives: Episode
Podcast highlights 2022
In 2022 we have talked to people with haemophilia, healthcare professionals, members of patient organisations or expert volunteers, learning how they are impacting care in their country or region.
Changing the landscape of blood disorders care in Africa
After attending a scholarship programme in France, early in his career, Prof Saliou Diop realised that a lot had to be done to improve haemophilia care in his home country of Senegal.
Empowering nurses to take on an active role in the haemophilia care team
Over a broad and distinguished career in the UK and more than a decade volunteering in Africa and Asia, Dr Kate Khair has become an important champion for haemophilia nurses.
National Women’s Group: empowering women with blood disorders to blossom (EP6)
Ms Wajiha Javaid has been working with the Haemophilia Foundation – Pakistan (HFP) since she was 16. She is currently Executive member of HFP and coordinator of the National Women’s group, which was officially formed in 2017.
Building a patients’ organisation in Indonesia (EP5)
When Novi Riandini got married to her husband, it was the day a close relationship with haemophilia started.
Shaping the next generation of haemophilia leaders (EP4)
Clerment Masoabi Sefojane is an active young adult, living with severe haemophilia A in Bloemfontein, South Africa.
How a team from Transylvania impacted haemophilia care across Romania (EP3)
Just a few years ago, people with haemophilia in the northern part of Romania had to travel 6 to 9 hours by bus or train to receive diagnosis and care. But thanks to a young doctor, Ciprian Tomuleasa, and his team in the city of Cluj Napoca the situation has significantly improved. The laboratory in Cluj Napoca has been upgraded to provide quality diagnosis, a new national registry has been established and haemophilia care in north Romania has been standardised.
Building a multidisciplinary haemophilia care centre from scratch (EP2)
Dr Laura Villarreal, paediatric haematologist and professor at the Faculty of Medicine at the University in Nuevo León – Mexico, has built up the haemophilia clinic at the University Hospital in Monterrey from scratch. In this episode you will hear about her vision of a multidisciplinary care team, how she was able to build it, and what it means for people with haemophilia and their families.
