NNHF virtual leadership programme for haemophilia practitioners 

NNHF virtual leadership programme for haemophilia practitioners 

As well as offering care and treatment to people with haemophilia, healthcare professionals are often expected to take up leadership positions at their institutions and often in the national patient organisation and other professional associations. 

Without any formal preparation or training, they suddenly need to lead and develop their teams, advocate for resources, pursue funding/research opportunities, manage projects and budgets and raise awareness of haemophilia amongst diverse stakeholders. 

This is why we created the NNHF Virtual Leadership Programme for Haemophilia Practitioners, which has been designed specifically for practitioners working in low- and middle-income settings. 

During this programme, you will undertake self-led virtual learning verticals, engage with expert facilitators in live virtual workshops, and exchange ideas with other participants from across the world on how to build leadership skills in a low-resource setting.

Programme structure

The estimated time commitment for each vertical is 4-6 hours, broken down as follows: 

  • 1-2 hour for self-led online learning 
  • 1-2 hours for follow-up exercises based on the online learning
  • 1.5 hour live virtual workshop 

As there are four verticals, the total time commitment for the programme over the 6 weeks is approx 18-26 hours, with one live workshop per week, plus a 1-hour introductory session and a 1 hour closing session (all virtual). 

Who should participate? 

Applications are invited from healthcare practitioners specialising in haemophilia in a low- or middle-income country, who is in a position to become a leader in your field. 

To ensure everyone is able to contribute and interact during the live sessions, we are limiting the number of participants to 15-20 people. 

Credits and logistics

The programme has been designed in partnership with Acasus, an organisation dedicated to helping governments and international organisations in low- and middle-income countries achieve transformational improvements in health and education. As well as working with governments, their non-profit partners include the Global Alliance for Vaccines and Immunizations (GAVI) and the Bill and Melinda Gates Foundation. 

The curriculum has been developed in consultation with our partner network, including internationally renowned haemophilia practitioners and NNHF project partners. The online modules include case studies presented by: 

  • Prof Johnny Mahlungu, Clinical Haematologist and Head of School of Pathology, University of the Witwatersrand and NHLS, South Africa 
  • Dr Sonata Saulyte Trakymiene, Pediatric Haematologist/Oncologist and Lecturer, Clinic of Children’s Diseases, Faculty of Medicine, Vilnius University, Lithuania
  • Dr Kibet Shikuku, Lecturer, School of Medicine, University of Nairobi and Consultant Haematologist Kenyatta National Hospital, Kenya 
  • Prof Laura Villarreal, Paediatric Haematologist and Professor at the Faculty of Medicine at the University in Nuevo León, Mexico 

All participants will receive a Certificate of Participation upon completion of the programme (e-learning modules and attendance at live virtual sessions). 

Please note: A laptop or tablet and stable internet connection is required. All content will be delivered in English. 

Watch our short film to hear Prof Miguel Escobar explain why this programme could benefit you and the haemophilia community: 

For questions and further information, please contact us at [email protected]


“I loved seeing the ideas in leadership and haemophilia work from other nations. The live sessions were very organised, specific, and had a dynamic that allowed everyone to understand and join the activities.” 

Dr Johanna Rodríguez, Dominican Republic 

“I came to know I am not the only one who is resource constrained. The problems faced by the different countries are more or less the same. I learnt with the experience of others, how to run a project with limited resources. ” 

Dr Dinesh Chandra, India