NNHF Healthcare framework

Inspired by the health system building blocks of the WHO Health Systems Framework, NNHF has developed a framework to analyse and evaluate care for bleeding disorders in a specific country or region. This framework helps NNHF and its partners identify a region’s needs and create a tailored strategic plan to address those needs and improve access to care.

This is an overview of the NNHF Healthcare Framework through which we will guide you in the project application process.

Service delivery

Infrastructure, care set-up
Organisation of care and referral system
Treatment guidelines
Patient flow

Health workforce

Responsiveness and interest of HCPs
Multidisciplinary care
Knowledge and education of HCPs
Training opportunities for HCPs
Professional associations/committees
Networks of HCPs in bleedingdisorders

Diagnosis and technology

Number of laboratories and distribution
Types of tests available
Patient flow for diagnosis
Diagnosis quality control (internal/external)

Treatment

IU/capita
Treatment regimens
Treatment options and safety
Supply and storage
Adherence to treatment

Registry and epidemiological information

Registry format and content
Registry ownership and recognition
Data safety and quality
Patient ID
Numbers of people with bleeding disorders

Governance and leadership

Healthcare system type
Policy and legislation
Government support
Bleeding disorders included in health agenda and/or health policies
Decision making

Finance

Budgeting for haemophilia and bleeding disorders
Resources allocation
Reimbursement levels
Percentage of “out-of-pocket-payment”

Patients and community

Patient organisation set-up, sustainability and leadership
Strategic planning
Patient knowledge and access to information
Level of patient empowerment
Awareness capacity and strategic planning
Advocacy capacity and strategic planning
Collaboration between key stakeholders in the bleeding disorders community

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Apply using the step-by-step guide in our new project application system.
Next project application deadline: 01 April 2020

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