NNHF Healthcare framework

Inspired by the health system building blocks of the WHO Health Systems Framework, NNHF has developed a framework to analyse and evaluate care for bleeding disorders in a specific country or region. This framework helps NNHF and its partners identify a region’s needs and create a tailored strategic plan to address those needs and improve access to care.

This is an overview of the NNHF Healthcare Framework through which we will guide you in the project application process.

Service delivery

  • Infrastructure, care set-up
  • Organisation of care and referral system
  • Treatment guidelines
  • Patient flow

Health workforce

  • Responsiveness and interest of HCPs
  • Multidisciplinary care
  • Knowledge and education of HCPs
  • Training opportunities for HCPs
  • Professional associations/committees
  • Networks of HCPs in bleedingdisorders

Diagnosis and technology

  • Number of laboratories and distribution
  • Types of tests available
  • Patient flow for diagnosis
  • Diagnosis quality control (internal/external)

Treatment

  • IU/capita
  • Treatment regimens
  • Treatment options and safety
  • Supply and storage
  • Adherence to treatment

Registry and epidemiological information

  • Registry format and content
  • Registry ownership and recognition
  • Data safety and quality
  • Patient ID
  • Numbers of people with bleeding disorders

Governance and leadership

  • Healthcare system type
  • Policy and legislation
  • Government support
  • Bleeding disorders included in health agenda and/or health policies
  • Decision making

Finance

  • Budgeting for haemophilia and bleeding disorders
  • Resources allocation
  • Reimbursement levels
  • Percentage of “out-of-pocket-payment”

Patients and community

  • Patient organisation set-up, sustainability and leadership
  • Strategic planning
  • Patient knowledge and access to information
  • Level of patient empowerment
  • Awareness capacity and strategic planning
  • Advocacy capacity and strategic planning
  • Collaboration between key stakeholders in the bleeding disorders community

Apply for a project

Apply using the step-by-step guide in our new project application system.
Next project application deadline: 01 April 2020

Apply now