Leveraging partnerships to maximise impact
In 2022, we continued our partnerships with the Fondation Pierre Fabre, the International Society on Thrombosis and Haemostasis (ISTH), the Novo Nordisk Foundation and the World Federation of Hemophilia (WFH). Each of these partnerships leverages on synergies that will increase and accelerate access to care and diagnosis for people living with bleeding and blood disorders.
Foundation Pierre Fabre: A joint approach to haemophilia and Sickle Cell Disease
2022 saw the launch of the NNHF’s project in Burkina Faso, where we are embarking on our first partnership with Fondation Pierre Fabre (FPF). The project will see NNHF and FPF collaborating on awareness, advocacy and educational activities relating to Sickle Cell Disease and haemophilia, marking the two focus health areas of each foundation. So far, lab technicians and other healthcare professionals from six regions have been trained as part of the ambition to double the number of healthcare professionals able to diagnose and care for bleeding and blood disorders.
In 2023, we will expand our partnership with FPF with a new project in Guinea, following a request from the country’s Ministry of Health for a joint approach to haemophilia and sickle cell disease.
ISTH: Supporting the establishment of Regional Training Centres
Through our partnership with ISTH, we support the development of current and potential ISTH Regional Training Centres by providing them with the necessary physiotherapy and laboratory equipment needed to excel in their role.
In 2022, Ramathibodi Hospital in Bangkok, Thailand became the first centre supported through this collaboration. Building on this partnership, the centre’s Prof Nongnuch Sirachainan delivered a webinar to NNHF partners advising them on how to prepare abstracts and poster presentations for congresses. This is seen as a stepping stone to building knowledge capacity, and achieving the ISTH goal of establishing self-sustaining scientific and educational efforts alongside the creation of Regional Training Centres.
We invite all interested parties to learn more about opportunities for training and support through the ISTH Regional Training Centre programme:
Novo Nordisk Foundation: Accelerating access to blood disorders care
The joint project with Kenya and Tanzania marks our first project with the Novo Nordisk Foundation (NNF), aligning with NNF’s strategy to fight inequities in health. Setting their sights on achieving a comprehensive national blood disorders policy in each country, the project’s achievements include reducing journey time to care by 17.5 hours in Tanzania and increasing the diagnosis rate by 14% in Kenya and 71% in Tanzania.
Watch our short film to see how the project will affect families like Eunice’s from Kenya.
WFH: Strengthening diagnosis through the International External Quality Assurance Scheme (IEQAS)
2022 marked the 10th anniversary of the first NNHF sponsored labs enrolling in the WFH IEQAS, the only internationally recognised external quality assessment scheme specifically for haemophilia, von Willebrand disease, and other bleeding disorders.
To date, our sponsorship has enabled 38 labs to participate in the scheme, 5 of which were newly enrolled in 2022.
