Uganda 1 fellowship

Programme
Management of haemophilia and rare bleeding disorders
Fellow
Dr Hilda Tumwebaze, paediatrician, Haemophilia Foundation of Uganda, Kampala
Host institute
Great Ormond Street Hospital, London, UK; responsible person: Dr Kate Khair
Duration
Three months, completed 2016
Objectives:
- Get equipped with knowledge regarding the identification, diagnosis and various treatment plans for patients with haemophilia
- Share and learn from experts who actively participated in the management of patients with haemophilia with focus on multidisciplinary approach
- Learn about the role of the patient association and collaboration between the medical and patient community
- Learn how to advocate for rights of patients with haemophilia in Uganda
- Importance of quality data and how to reach this goal through the establishment of a national registry
- Understand the global statistics of haemophilia.