In 2021, Hawa would face a tough choice if one of her two sons had a bleed: Embarking on the 8-hour journey to the clinic in Bamako meant risking their lives due to the ongoing armed conflict in her region of Mopti, making travel unsafe. Staying at home meant her boys’ condition could worsen, risking long-term complications and even death.
We rely on a global network of expert volunteers to support our projects through training and knowledge sharing, both onsite and online. In 2022, we worked with volunteers from 12 countries spanning 5 continents.
With healthcare professional training, creation of home treatment guidelines and a 2million IU increase in factor VIII procurement, the Palestinian Ministry of Health is ensuring people can access the care they need, when they need it.
In the world’s 2nd most populated country, many voices need to be heard on the journey to improved and standardised haemophilia care.
A 40% increase in the diagnosis rate, up to 8-hours reduction in journey time to receive care, and budget allocation from the government.
Low diagnosis rates are a challenge faced by NNHF partners across the world. Improving and establishing diagnostic facilities are effective ways to address this challenge.
In 2017, the haemophilia diagnosis rate in Peru stood at 17%, with diagnosis only available in the capital city, Lima.
In 2019, haemophilia diagnosis was only available in Nepal’s capital city, Kathmandu. The country’s mountainous landscape made travelling for diagnosis impossible for many. Even sending samples for testing was not a viable solution due to the risk of them spoiling during the long journey.
In 2019, whilst treatment was included on the Essential Drugs List in Mauritius, it was only available in hospitals due to the government’s concerns about the risks of home treatment.
