Improving diagnosis and multidisciplinary care in Nepal

In 2019, haemophilia diagnosis was only available in Nepal’s capital city, Kathmandu. The country’s mountainous landscape made travelling for diagnosis impossible for many. Even sending samples for testing was not a viable solution due to the risk of them spoiling during the long journey.

Mali: A safer route to care and treatment

In 2021, Hawa would face a tough choice if one of her two sons had a bleed: Embarking on the 8-hour journey to the clinic in Bamako meant risking their lives due to the ongoing armed conflict in her region of Mopti, making travel unsafe. Staying at home meant her boys’ condition could worsen, risking long-term complications and even death.

Leveraging partnerships to maximise impact

In 2022, we continued our partnerships with the Fondation Pierre Fabre, the International Society on Thrombosis and Haemostasis (ISTH), the Novo Nordisk Foundation and the World Federation of Hemophilia (WFH). Each of these partnerships leverages on synergies that will increase and accelerate access to care and diagnosis for people living with bleeding and blood disorders.

Meet our expert volunteers

We rely on a global network of expert volunteers to support our projects through training and knowledge sharing, both onsite and online. In 2022, we worked with volunteers from 12 countries spanning 5 continents.