Harry Mayeah Koroma shares his experience on working to establish basic haemophilia care in Sierra Leone. As a practising physiotherapist, Harry was puzzled. In 2021, after providing therapeutic massage to a boy with a swollen knee for three weeks and with no sign of improvement, he advised the patient to consult a doctor. Weeks later,…
Argentina 5, Mar del Plata project Significant improvements in the quality of life for people with haemophilia have been achieved through education and awareness, thanks to a two-year project led by haematologist Dr Gabriela Sliba and Mrs Maria del Carmen Jodar, President of the patient organisation Fundación Hemofilia MDQ in Mar del Plata. The project…
The NNHF salutes our project team’s achievements in decentralising haemophilia and sickle cell disease diagnosis in the Democratic Republic of the Congo (DRC) in partnership with the University Clinic of Kinshasa On World Sickle Cell day we are pleased to celebrate the impact of the NNHF’s first supported project in the DRC. Early in 2021,…
The NNHF developed a set of material to support awareness-raising efforts and allowing anyone to share key facts about haemophilia and how to recognise the symptoms. Here below you will find three sets of ‘carousels’ ready to be used. By publishing the JPEG images in a single post, respecting the order indicated in the file…
We are pleased to announce the signing of a new partnership agreement between the Novo Nordisk Haemophilia Foundation (NNHF) and the Fondation Pierre Fabre (FPF) to jointly improve awareness, diagnosis, care, and advocacy for blood disorders in Guinea. The two foundations have signed a Memorandum of Understanding (MoU) to leverage synergies through their respective programmes…
Maria del Carmen Agurcia made a major impact on improving haemophilia care in Honduras The recipient of the Novo Nordisk Haemophilia Foundation (NNHF) Community Award 2022 is Maria del Carmen Agurcia, President of the Honduran Haemophilia Society (Sociedad Hondureña de Hemofilia – SHH) from 2000 to 2013. She played a key role in strengthening this…
Cochabamba is located in the Valle region of central Bolivia, a country with a comparatively low diagnosis rate for haemophilia: only 13%. That may soon improve thanks to the team from the Asociación Cochabambina de Hemofilia working on the second project supported by the Novo Nordisk Haemophilia Foundation (NNHF) in Bolivia. The project aims to…
Sickle cell disease (SCD) and haemophilia are two different types of inherited blood disorders. A drive to accelerate access to diagnosis and care for both conditions is leading the Novo Nordisk Haemophilia Foundation (NNHF) to join forces with key partners like the Fondation Pierre Fabre and the Novo Nordisk Foundation. Since 2020, the NNHF has…
People living with haemophilia in Senegal can now access information and advice about bleeding disorders via a new application integrating a chatbot and powered by Artificial Intelligence (AI). Officially launched on World Haemophilia Day, 17 April 2022, in Dakar, Senegal, the new app allows users to access educational content on haemophilia in two local languages,…
