“My name is Salifu Gaye, and I’m a physician at Edward Frances Small Teaching Hospital (EFTH) in Banjul. I work very closely with nurse Vandy Jayah, who initiated the creation of the patient organisation, Safe Motherhood and Hemophilia Foundation The Gambia, to change the care and treatment of haemophilia in our country. We are grateful…
“I am Dr Olivat Aimée Rakoto Alson, a full professor of haematology and head of the haemophilia department at the University Hospital in Antananarivo, the capital of Madagascar. I became interested in bleeding disorders thanks to my medical specialisation and began working with haemophilia in 2001, starting with biological diagnosis. “Thanks to a strategic communications…
“I am Dr Natalia Padilla, a paediatric haematologist at Hospital General de Occidente in Zapopan, near Guadalajara. I was hired in 2009 to develop the hospital’s Paediatric Haematology department. What motivated me to work in haemophilia was seeing a group of patients with particular needs and a huge potential for improvement through management and organisational…
“My name is Dr Satchmo Shyamayanda, a paediatrician and department head responsible for children’s health at Kasama General Hospital. I am proud to be leading the campaign to increase awareness, mentorship, screening, diagnosis and treatment of both haemophilia and sickle cell disease in Northern Province. In the past year we were able to establish our…
The “Accelerating access to blood disorders care in Kenya and Tanzania” project is co-funded by the Novo Nordisk Foundation and the Novo Novo Haemophilia Foundation. “My name is Zuhura. My grandson, Sahin, is 7 years old and lives with haemophilia A in Morogoro. His clotting factor medication is administered through the veins which usually requires…
“Hi, I’m Shashank. I am 21 years old and live with haemophilia A in Bangalore. Today I am fortunate to be able to access care and pursue my education. But it wasn’t always that way. For many years my condition remained undiagnosed. When I realised that I was different from other kids, I started distancing…
“I’m Dr Gurtchumelia Darejani from Kutaisi, the only paediatric haematologist in my region. I’ve been working in haemophilia for 10 years. The lack of facilities and medical experts in remote regions of Georgia like ours means that people, sometimes with disabilities from their disease, must travel hundreds of kilometres to obtain a diagnosis or receive…
“My name is Peng Keyi and I am proud to be a volunteer helping people with haemophilia in Jinan, Shandong Province. When I think of how far I have come in my own journey, I am filled with gratitude. I was diagnosed with severe haemophilia A shortly after I was born in 1993. Due to…
“My name is Mylner Oliveira Fermiano de Souza and I am a biomedical haematologist by training. I’ve been working in the lab at the Institute of Haematology and Haemotherapy of Amapá (HEMOAP) since 2014. Haemostasis, the process that stops the body from bleeding in case of an injury, is an interesting science. I was pleased…
