Acquiring knowledge to inspire others

The project team of this first NNHF project in Bangladesh, aware of the need to improve haemophilia care in their country, initiated a small project to build partnerships both within and across borders to plan a much-needed development strategy.

Structured care with limited resources

There was an urgent need in Bangladesh to build the capacity of the multidisciplinary haemophilia care teams in the main haemophilia centres of Dhaka, Rajshahi and Rangpur. Furthermore, there was a need to develop diagnostic facilities in order to encourage people with haemophilia and their families to attend care centres and for greater engagement of authorities and the public in bleeding disorders.

Novo Nordisk Hemofilia Foundation. New Delhi.

Getting inspiration

One of the key activities in 2019 was a workshop to define a strategy for haemophilia care in Bangladesh involving establishing clear goals. A small delegation, including Dr Humayra Nazneen and physiotherapist Easmin Doly, from Dhaka, the Hemophilia Society of Bangladesh (represented by its president Nurul Islam) and youth group president Amir Hamza travelled together to Uttar Pradesh in India.

“We were searching for better practices in how to structure haemophilia care in a sustainable way with limited resources” explained Nurul Islam, president of the Hemophilia Society of Bangladesh.

The delegation visited a hospital in Noida, a satellite city of Delhi in the Uttar Pradesh state of India. There they had the opportunity to meet Dr Nita Radhakrishnan, the leading haematologist in this large hospital, who provided inspiration to the Bangladesh project team in how to structure care with limited resources.

Get nurses involved

Dr Nita is particularly known in India for her approach in involving nurses in haemophilia care.

“’Get nurses involved’ was a key take-away for us,” noted Dr Humayra Nazneen.

“It was evident from our visit to Noida that a broad team based on expert responsibilities offers the best care for people with haemophilia. It’s important that doctors are not a bottleneck to nurse involvement,” shared Dr Humayra Nazneen.

Continuing to share knowledge

The impetus is now on the Bangladeshi team to implement the learnings from their visit to India and continue to build up the capacity and quality of care in their own country.

This has begun, with the project team having held a national strategy workshop on arriving back in Bangladesh. The aim was to ensure alignment by re-assessing needs and the development approach previously defined. Mapping the current situation in terms of hospitals, healthcare professionals and people with haemophilia was a critical first step in this new strategy development. Stakeholders were invited from across the country, the impact of which is a more aligned approach to improving haemophilia care.

Through a visit to a neighbouring country in Asia, the project has empowered the local team to look thoroughly at their own care structure for their own way forward.

“Engaging across borders and another country being willing to inspire others has been the key to this project’s success,” concluded Nurul Islam.

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